Monday, September 20, 2010


I finally get a few hours to MEself and my pulmonary function goes screwy.  I don't really like blogging this stuff because I don't want to appear alarmist.  BUT  I've enjoyed (seems like the wrong word to use) some blogs by people with CF and have found them to be useful and informative as well as sometimes entertaining;  therefore I feel compelled to add my CF experiences to my blog too.  (On a lighter note there IS a CF support group on fb that quite a few friends and family have joined, and which I totally appreciate.  It's a really nice gesture.  But I can't join.  I can't bring myself to a) "LIKE" the CF Foundation!  (It just goes against the grain People!)  and b) I don't want it on my page like an ad for my having CF (cough.  cough.  wheeeeze).  I know.  I am that immature.  But look how far it's got me?)

My cardio workout got hard one day last week.  It's as simple as that.  I was fine.... not much cough, no other symptoms and then while working out I realized that I was getting my butt kicked by my regular workout.  I eased back a little but was still struggling to complete the 45 minutes of cardio.  I had the classic somewhat asthmatic symptoms of shortness of breath, tightness in my chest, inability to fill my lungs.  Weird.  But even more weird because I didn't feel in any way sick.  Normal blood sugars.  No fever.  Good appetite and great energy.  What the?  I used my handy dandy little hand held spirometer and it confirmed that my pulmonary function is lower than normal.  I can't get in to the UW until November or to my local pulmonologist until November either (Murphy's law at work.)  I did go to see my fabulous and amazing local doctor (actually a Physicians Assistant) who is (as previously mentioned) fabulous and amazing.  My blood work looks good.  We're waiting on the x-ray report.  The UW CF RN (I'm totally working the acronyms just for the pure entertainment of it.  Keep UP, People.)  called in some antibiotics.  I feel fine.... I look fine (!)  I'm acting fine!  (So let's not clutter up my comments section with "get well wishes".  You all KNOW it'll only irritate me.


  1. I started following your blog because I stumbled upon it... I think by looking for "farm blog Olympic peninsula (or Port Angeles)"... something like that. It turns out that my husband has CF and Port Angeles (Freshwater Bay area) is our homebase. We are traveling around the county now and won't be back there until Spring. Anyway, I just wanted to say that my husband has exactly the same view about CF and will rarely talk about it - well, it has served him well as he is doing quite well at 42... even though he ignores all doctors advice. Thanks for mentioning the CF Facebook group. I think I'll join. :)

  2. Hey, it's me again... I was just wondering if it is your family that Drake (the dog) adopted???

  3. Funny that Heidi found you. What a small world. Just wanted to give you another one to completely eliminate all words from your post title. CXR is the acronym for chest x-ray. :) Love you.

  4. ooooo Lisa!! CRX!! I LOVE it!

    Heidi!! How funny! Yes, Drake adopted us and he's STILL the biggest and most lovable giant baby! Crazy coincidences with the Port Angeles/CF stuff plus we are both the same age.... Crazeeeeeee!

  5. Wow! What a crazy small world! I am stunned!

    I've met one of your boys... he is such a cutie and so very sweet, that I understood exactly why Drake adopted him!

    Michael (my husband)is Bill's son - we stay at the ranch when we aren't traveling. Drake used to be our dog (Dad's)... but he still visits. lol!

    I just can't believe that we are clear across the country (but are still neighbors) and I found you through your farm blog!

    Well, it's very nice to meet you!

  6. I. AM. IN. SHOCK. That is TOOOOOOOO crazy. It's very nice to meet you too! (Drake says "hi"!)


About Me

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Port Angeles, Washington, United States
I recently moved with my family to Port Angeles... we are kind of re-inventing ourselves... I am 39 and have Cystic Fibrosis.

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