Wednesday, October 6, 2010

blah blah blah more CF stuff blah blah blah

I've figured out that if I post something CF related and it's regarding a fluctuating health issue then I am kind of tied into updating said issue.  Not easy for someone who rarely shares.....  (All of a sudden I seem to be sharing waaaaaaay too much and waaaaaaay too often and I'm waaaaaaaay out of my comfort zone.)  My PFT numbers have continued to rise.  The rise is frustratingly slow, but it's slow and steady.  My baseline is around 2.30.  I dropped to 1.01 and am now back to 1.5.  I have noticed a huge difference in my ability to work out with the increase.  I am actually working out at a decent non-embarrassing level.  It's not my normal level but I'm improving.  I still haven't figured out what actually caused all this, some more labs are in the works and I'm going to see a local (not my typical) pulmonologist in October.  (Yes, I COULD say the date but the chance of some of you managing to piss me off looking for updates is too great, so I'm not going to.  Annoying?  Controlling?  I know.)  If I had misgivings about seeing ANY local pulmonologist before I met my current doctor, I have almost no faith in this visit.  Seeing someone new when you are already sick is not ideal.  I'll put it this way, I'm not certain that I won't be canceling the appointment. 

I've never had to spend so much time doing treatments.  BUT I've also never felt such benefit either.  So the time spent (although inconvenient) does not seem like time wasted.  Although I haven't had to do many treatments in the past I do NOT consider myself uncompliant.  I've always done anything that I considered beneficial.  It is always going to be my treatments on my terms.  Crap.  All this sharing and openness is exhausting!  It is SO not ME!


  1. It's always good for you to do something out of your comfort zone!! I hate doing it, but I've heard it's good. :)

  2. Understand completely! I have never been accused of being compliant BTW :) While I understand the discomfort, I do appreciate the update.

    97 Roadtrek 170P "Taj Ma Trek"

  3. Actually Mike... you get a free pass. Any comment. Any time. I'm fickle like that.

  4. Nicole! I've heard it's good too, but I'm still not convinced!!!!


About Me

My photo
Port Angeles, Washington, United States
I recently moved with my family to Port Angeles... we are kind of re-inventing ourselves... I am 39 and have Cystic Fibrosis.

Blog Archive