Thursday, January 3, 2013

A tangled mess.

One thing I like about my pump: not having to grab my Pens before leaving the house and then having to have them with me.  Now I just LEAVE the house.  Pump on board.

Five things that I DON'T like about my pump:

#1   (And the most irritating) is people who do NOT have diabetes telling me HOW much I'm going TO  LOVE my pump.  I'm okay with medical people or people who KNOW someone with a pump.  But to everyone else sipping their  beer/wine/cooler/mocha/monster:   Really??  Cause why don't you try sticking this giant ass needle subcutaneously into YOUR stomach and get back to me or MAYBE you should:  just.  Shut.  The.  Fuck.  Up.

#2  Tangled Up Tubing Syndrome (TUTS)  I sleep with my pump next to me or under my pillow but wake up with it impossibly wrapped around my body.

#2  Snagged Tubing Syndrome (STS).  Twice I have snagged the tubing on a door handle and although it does not hurt to rip the catheter out, it is a weird sensation.  And then it is aggravating to have to go through a whole new set change and stick.

#3  Realizing that I am walking around with excess tubing visible.  It just looks weird. 

#4  Set changes.

#5  Beeps and alarms.  Essential and handy.  Possibly life-saving.  But that doesn't mean I have to like them.

#7  Inspired by LisaP.


  1. Dang it Dara, I really need to keep up on reading your site! Of course I knew about the CFRD but had no idea all the crap you were going through related to it! Now I feel like a complete jerk for yaking about how happy I was about when my tests for it were negative. I hope you can forgive me for that, didn't mean to be insensitive at all. I know if anyone can handle this and make the best of it, it is you!


  2. Oh JEEEEZE! YOU understand me more than ANYONE and could NEVER be insensitive!! I love you guys!


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Port Angeles, Washington, United States
I recently moved with my family to Port Angeles... we are kind of re-inventing ourselves... I am 39 and have Cystic Fibrosis.

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